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Table 1 Factors of importance to patients (a summation of patient perspectives)

From: Looking through the patient lens – Improving best practice for young people with juvenile idiopathic arthritis transitioning into adult care

Day-to-day life with JIA I want to find the right balance of treatment that fits in with my life
I want to be able to manage my new responsibilities such as a new job
I want to be able to deal with the physical limitations my condition places on me, such as carrying books
I want to be in control of my condition whilst at university
Emotional and developmental factors I need to find the right language for me when discussing my condition with my boyfriend/ girlfriend/ friends
I am concerned about flare-ups during the summer when my body is on show
I need coping mechanisms to be able to keep up with my friends and our social lives
Seeking independence I want to put everything in place to facilitate my travelling plans
I want to be able to manage without my parents
I want to prove to my parents that I can manage my condition successfully
I want a portfolio of options to be able to manage pain or flares when this occurs, each one to be used depending on my circumstances