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It really is odd that I feel so tired. I wonder what my blood count is. There may be something wrong, but as my son said: Mom you are 74, it might just be something ordinary.
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At home patients experienced unfamiliar symptoms causing worry and doubt. Patients interpreted their symptoms alone or with relatives seeking explanations.
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Symptoms cause concern
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I kept thinking oh, no… is it a thrombosis or a stroke because I had sensory disturbances. I wondered if it was stress.
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Suddenly I felt a pressure in my stomach and I lost my appetite. It seemed strange to me, as it ought to be the other way around; with a lack of appetite first…I thought that it would soon disappear, so I could start eating again. I am so skinny.
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Sudden or persistent symptoms limited activities in everyday life. Sudden fatigue required frequent rest.
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Symptoms limit activity
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During the first week I was suddenly overcome by fatigue and had to rest for 20 minutes before I could continue with what I was doing.
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The first days at home I did nothing at all because of pain. I only put on underwear and a sheet to avoid the pain.
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We went for a walk, just a short one; I mean we don’t have to walk for hours as usual. Then I went to bed again and slept for an hour. Every day I went to bed after breakfast and again after lunch, I was so tired.
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