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Table 3 Barriers and facilitators to self-care in chronic heart failure

From: Barriers and facilitators to self-care in chronic heart failure: a meta-synthesis of qualitative studies

Author / Year/ Country / Ref

Barriers /and the behaviours they affected

Facilitators/ and the behaviors they affected

Martensson et al. (1997) Sweden

- Physical limitation, feeling lack of energy / physical activity

- Awareness of threat / physical activity

- Hopelessness / decision making and motivation for management symptom

- Environmental support/ self-confidence

- Short term memory loss and confusion / taking medicinel

(Rogers et al. 2000) United Kingdom

- Misconception about CHF / medical and regimen adherence

 

- Acceptance / decision making

- Lack of facility / access to medical care

- Avoidance, acceptance and denial / to obtain new information for caring themselves, and participate in decision making

Buetow et al. (2001) New Zealand

- Multiple medicine, side effects of medicine / adherence to treatment

- Coping strategies of disavowal / taking medication and following prescriptions

Riegel & Carlson (2002) USA

- Lack of knowledge / adherence to regimen and exercise

- Supportive strategies; emotionally and tangibly / motivation, hope, adaptation with CHF

- Atypical symptom and complexity of symptom / failing in following recommended diet

- Negative emotion and no environment support/ motivation

- Comorbidity / complexity of self-care and difficulty in symptom recognition

- Inadequate information (about CHF, its symptoms and their management)/ symptom recognition and definition of source of exacerbation symptom + symptom monitoring + receiving medical care

Horowitz et al. (2004) USA

  

Scotto (2005) USA

- Conflict between values of patients and nurses / not accepting new information and recommendation

- Acceptance and support from health care professional / adaptation to new life leads to adherent to appropriate self-care behaviors ( physical activity and adherence to prescribed instructions)

Eldh et al. (2006) Sweden

- Insufficient knowledge of educators and nurses / patients’ knowledge and skill for self-care

- Respect for patients / Increasing their knowledge and Participate in decision making

Riegel et al. (2006) USA

- Lack of knowledge / specially regarding diet and salt restriction

- Sympathy, reflective listening, acknowledging cultural values / engage patients to enhance their knowledge, skill and motivation to fallow self-care rules

- Information / building skills of self-care in patients -Stimulating supporting resources / collaboration and participate in care programs

Rucker-Whitaker et al. (2006) USA

- Denial and anxiety / taking medicine

- Social activity and mutual support / motivation

- Education especially with patients’ own language / adherence to regimen

Dissatisfaction with received care / failed perceived benefit of self-care action such salt limitation

Schnell et al. (2006) Canada

Hopelessness / motivation for physical activity and dietary regimen

- Social support, satisfaction with health system delivery/Positive outlook, perform self-care behavior

- Simplicity of self-care/ daily weighing and symptom monitoring,

- Understanding reason for self-care / perceived health care roles, perceived benefit associated with physical activity

Falk et al. (2007) Sweden

Cultural issues, health seeking behaviours / adherence to regimen

- Trust family and formal care givers / following instructions

- Social activity/ physical activity

- perceiving the risk of withdrawing medicine / adherence to medicine and regimen

- Facility ( Care availability) / care - seeking

Davidson et al. (2007) Australia

- Cognition problems due to CHF symptom / weighting, regiment, taking water pill

 

Riegel et al. (2007) USA

- Depression / motivation for self-care

 

- Poor family functioning / self-care maintenance and management

- Denial of illness/ adherence to regimen and treatment

Kaholokula et al. (2008) USA

- Hopelessness/ decision making

 

- Lack of family knowledge/ misconception about treatment preference

- Financial -burden / adherence to regimen

- Lack of trust physicians / medical using herbal medicine

- Lack of information about CHF symptom / symptom recognition and help-seeking

Rodriguez et al. (2008) USA

- Comorbidity / symptom recognition (confusion about cause of symptoms )

 

- Lack of knowledge / sodium restriction and decision making

Sheahan & Fields (2008) USA

- Loneliness/ motivation to care

- Living with family / motivation for adherence to regime

- Cultures / dietary behaviours

- Lack of experience / medical adherence and symptom recognition

Dickson et al. (2008) USA

- Side effect of medicine and interfere in work and normal life / medical adherence

- Long time experiences of HF / self-management and symptom monitoring

Traditional education & insufficient skill in educators / developingself- maintenance (Diet, diuretic titration and exercise , low salt diet)

Dickson & Riegel (2009) USA

- Complexity of self-care rules and no agreement between doctors and patients about this difficulty, hopelessness / fitting prescribed regimen into daily life all aspects of self-care were affected)

 

Granger et al. (2009) USA

- Side effects of medicine interfering with social activities / medical adherence

 

Clark et al. (2009) USA

- HF symptoms/ symptom recognition

 

- Lack of knowledge / self-management e.g. help-seeking and

- Lack of confidence / self-management

- Personal values linked to culture/ help-seeking

- Female, depression/ self-care confidence, decision making and interpreting symptoms

Riegel et al. (2010a) USA

- Poor family support/ symptom –management

- Male/ self-care confidence and symptom recognition

- Family support , hopefulness/ symptom management

- Complexity medicine / adherence to medicine

Ming et al. (2011) Malaysia

- Limited communication of doctors / adherence to medication

Family support/ self-care confidence and adherence to treatment

- Difficulty in remembering/ adherence to medication and regimen

- Cultural issues / adherence to diet (having favorite food)

Dickson et al. (2012/ published online) USA

- Knowledge /symptom monitoring and management (e.g. attributing CHF to stress)

- Social support / adherence to regimen and self- confidence

- Financial support and access to facilities / adherence to medication,

- Spirituality / motivate to care for themselves

- Some cultural belief leading to strong familial support / engaging in self-care maintenance and self-care management, e.g. preparing unsalted food by family.